‘I want to die trying to live’ the 19-year-old told doctors.
A UK court has ruled a 19-year-old critically ill female patient with a rare disorder cannot make her own decisions about continuing her medical care, as her family battles her doctors’ desire to stop treatment and pursue end-of-life care.
Charlie’s parents lost a bid to bring him to the U.S. for an experimental treatment for his critical condition and he died after the hospital withdrew life-saving care after a months-long high-profile legal battle. The UK court has ruled critically ill teen, called “AT,” with a rare disorder cannot make her own decisions about continuing her medical care.But her doctor believe “ST” is “actively dying” and has no hope of a cure to resume life outside intensive care.The hospital told the court the 19-year-old is incapable of making decisions about her future medical care because she is under the “delusion” that her death is not imminent.
The girl’s family described the long battle with the hospital as “a year of continuous torture” for them. Two psychiatrists assessed the teen was capable of making decisions about her future care for herself.Getty Images/iStockphoto “We are shocked to be told by the judge that our daughter does not have capacity to make decisions for herself after all the experts have said that she does.
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