A local ALS patient and advocate made his way into an important film that is going to be shown this week at SXSW. It chronicles the development of a new and powerful ALS advocacy nonprofit called I AM ALS.
– A San Antonio ALS patient and advocate made his way into an important film that will be shown this week at SXSW.many times in our newscasts. He’s a local ALS patient who travels nationwide, advocating for ALS research, treatments, and changes in laws.Sunday at South by Southwest in Austin“I’m in the film a few times, where I’m sharing some of my thoughts about ALS and I AM ALS as an organization,” Reyes said.
“When Brian was diagnosed with ALS, he came to Sandra with a crazy idea of creating a nonprofit in the hopes of advocating for research and improving the quality of life for ALS persons and their families,” Reyes said.“For years, Social Security benefits had a five-month waiting period to receive initial benefits,” Reyes explained. “Five months could mean loss of a home, loss of resources for individuals that are financially devastated by ALS.
“It really is a glimpse at the power that individuals, a small group of people, can make a huge impact,” Reyes said.Executive producers Katie Couric and Phil Rosenthal added some star power to the documentary.
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