Heather Guidone is a patient advocate & the program director at the Center for Endometriosis Care. She also has endometriosis. Read her personal & professional advice on talking about UterineHealth and your symptoms.
What caused the delays for your diagnosis and why is it so hard for women to get uterine conditions diagnosed?
A lot of the construct around endometriosis is that it is a menstrual disease, that it’s killer cramps, that it’s just a bad period, when — in fact — it’s a systemic inflammatory disease outside of the uterus. Of course, it goes without saying that when we talk about traditionally female-identified diseases like endometriosis, there’s definitely a gender bias, less funding for studies, etc.
Also, be sure to bring up any symptoms you have in addition to or aside from menstrual pain, such as bowel, bladder or even lung issues. Ask your provider about why these symptoms may be happening and how you can get aFamily history is important, but because these subjects are taboo, often the family history narratives get lost. For example, my mom’s side of the family is full of women.
Most folks, on average, will see between five to seven physicians before they’re even really being heard.
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