Content creator Anna Cooper says when people look at her they have no idea of the pain she is in.
"I felt incredibly grateful and lucky, but it didn't come without its challenges," she said.
"I think that's what made me turn to social media. There's so many people in my situation - somewhere down the line in our journeys we've all got something similar." "I think that's why a lot of people turn to others online, for support but also for trying to understand the condition." "There is a lack of understanding, because your insides are not falling out of your body for someone physically to see."
Like Anna, Keith started using social media to log his experiences, but now has more than 18,000 followers across his accounts, with his largest presence being on TikTok.
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