The FDA has fast-tracked a new ALS treatment for patients whose disease is genetic. Patients who have been getting the injections report a slowing of their disease progression and even renewed strength.
The spinal injection is calledWheeler wasn’t able to get into the FDA trials for toferson but was able to start it a year ago under the FDA’sShe said the spinal injection treatment is intense, and she has to drive 3 hours to get the procedure done each month, but she can tell the treatment is working.
She wears leg braces and uses a cane, walker, or scooter at times but sees a definite slowing of her progression. “We’re hoping by being able to isolate this gene by being able to utilize this therapy to slow down the progression of ALS, to eventually find a cure for ALS before people are even diagnosed with it, or to diagnose people early,” Dalager Brunner said.Doctors say anyone diagnosed with ALS should ask for a“Genetic testing should be your first go-to,” Wheeler said, expressing frustration that she wasn’t tested sooner.
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