Families of severely disabled children across the country are worried about the future of crucial Medicaid payments they started receiving to provide care during the COVID-19 pandemic
Nathan Hill started receiving $12.75 an hour from a stateprogram to help care for his severely disabled son during the pandemic, money he said allowed his family to stop using food stamps.
A total of 39 states, with the help of the federal government, either started paying family caregivers or expanded the population eligible for payment during the pandemic, according to a survey last summer byDepending on the state, family caregivers were paid for helping people with intellectual or physical disabilities, medically fragile children or patients dealing with traumatic brain or spinal cord injuries. Details like pay rates and who could be paid varied.
About 53 million people provided care for family members with medical problems or disabilities, according to a 2020 report from AARP and the National Alliance for Caregiving. The money allowed the family to build some savings since Jason quit his job several years ago to become a caregiver. It also allowed them to start taking the girls on outings to socialize them. They would make regular trips to Walmart so the girls could learn how to make choices and pick out a small item to buy.
Idaho Medicaid administrator Juliet Charron said the state was working to continue reimbursement for parents and spouses who provide care. But she added that the program will “likely look a bit different from the flexibility that has been in place” during the public health emergency.He was paid during the pandemic to provide non-nursing care like bathing and changing Brady, who needs around-the-clock care after surviving a rare brain cancer diagnosed at just 14 months old.
More than 650,000 people were on waiting lists for home and community-based services in 2021, according to another KFF report. Who winds up on that list can depend on factors like worker shortages, the number of available services and whether states check patients on the list for eligibility.
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