Facing the end of the federal public health emergency in May, many people experiencing lingering effects of the virus say they feel angry and abandoned by policymakers eager to move on.
“Patients are losing hope,” said Shelby Hedgecock, a self-described long COVID survivor from Knoxville, Tennessee, who now advocates for patients like herself. “We feel swept under the rug.”, or about 16 million, were experiencing long COVID, or ongoing health problems that continue or emerge after a bout of COVID-19. Researchers estimate that 1.6% of U.S. adults, or about 4 million, have symptoms that have significantly reduced their ability to carry out day-to-day activities.
“One of my friends committed suicide in May of 2021,” Hedgecock said. “She had a mild COVID infection, and she progressively had medical complications continuously pop up, and it just got so bad that she decided to end her life.” Before contracting COVID during spring 2020, Hedgecock’s life revolved around fitness. She worked as a personal trainer in Los Angeles and competed in endurance competitions on the weekends. At 29, she was about to launch an online wellness business, then she started having trouble breathing.
Months later, under the direction of a specialist, Hedgecock underwent a test measuring electrical activity in the brain. It revealed her brain had been starved of oxygen for months, damaging the section controlling memory and language.
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